Finances

At minimum you are going to need to devote 5-6 weeks away from your job and this is only if you are able to work remotely. If you cannot work remotely then you will have to plan on being away from work for 3 months.

Tips for Being Financially Prepared

It is important to have some sort of savings to rely on while you are off from work.
If your job offers disability leave start the the process or apply for disability insurance or caregiver medical family leave if your state offers it.
FMLA offers 12 weeks of unpaid leave and only a few states offer payment while you are on leave: California , Delaware, Oregon, Washington, Washington D.C . , Colorado, Massachusetts , Maryland , Maine, Connecticut, Hawaii, New Jersey, New York, and Rhode Island .
If you are fortunate to have your disability or caregiver leave pay through the state, that's great however it can take a long time for processing and to receive payment, making a savings handy.
If you live far away from the hospital where you will be receiving treatment, there are organizations that provide free housing. See housing options here .

Insurance

Unfortunately insurances do try to deny coverage for care in order to avoid expense. However, if you have chosen a good medical provider they will fight insurance and provide the support that is needed to state that the curative option of your choosing is needed to your insurance company.

Tips for Getting the Best Insurance Coverage

Whenever you have open enrollment at your job always try to get the more expensive insurance because it covers more critical care that is needed for a sickle cell patient and it is likely to have better coverage for a bone marrow transplant or gene therapy.
If you have been going to the hospital from frequent sickle cell crisis, strokes, acute chest syndrome, and other complications that come along with Sickle Cell Disease, this is enough to make the case that intervention is needed.
A good time to start the bone marrow treatment process is after you have already spent a good amount of money on out of pocket cost and have met or exceeded your deductible. This should lower the costs for co-pays and medication.
You will want to avoid switching insurances when you start the process. This can lead to delays and different insurance companies have different levels of coverage.