Our life after a haploid identical bone marrow transplant for Sickle Cell Disease.
It’s day +47. It’s a lot of meds that Amaya has to take in the morning and at night. These are to ward off graft vs. host disease and infection. Overtime she will slowly come off meds, we will go home on two and then after a year 0 meds. Right now things are peaceful, […]
Day +47 Post Transplant Read More »
We made it to the Baltimore Ronald McDonald House some updates: * Amaya is 100% engrafted (sometimes you can have a 90% or so engraftment with some of your old cells remaining, she has no sign of hers which is amazing!) * Before getting discharged her Hickman / port did get an infection so they
Amaya lost her hair on Friday and at first it was very traumatic for her. I cut my hair down low in support. My warrior princess has bounced back today, is in better spirits and praise God no complications. She has required transfusions which is normal at this stage but now her numbers are starting
Hair Loss After Transplant Read More »
Amaya has two November birthdays Amaya’s Haplo BMT was on November 1st and she turned 9 years old November 8th. Today we are on day +10 of her BMT. So far no bad side effects No nausea, no vomiting, no sores praise God and she still is full of energy. Patients do typically lose their
Two November Birthdays Read More »