It’s day +60 post haploid identical bone marrow transplant. Today marks another milestone! I am a little nervous because she also did another test …
If you are interested in learning more about curative treatments for Sickle Cell Disease, this website is a resource website where we provide information about:
- Picking the right curative option for you
- Picking the right team
- Financial resources such as caregiving/medical leave programs (at minimum you should plan to be away from work for 5-6 weeks)
- Resources for where you can get free or low cost housing if you live far away from the treatment center.
- Our personal experience with Haploid Identical Bone Marrow Transplant for our 9 year old daughter who was born with Sickle Cell Disease.
I am not a doctor, I am here to share our experience and provide helpful resources you may not have known about. When utilizing this resource please consult with trusted medical professionals before making any medical decisions.
It’s day +60 post haploid identical bone marrow transplant. Today marks another milestone! I am a little nervous because she also did another test …
It's day +47. It's a lot of meds that Amaya has to take in the morning and at night. These are to ward off graft vs. host disease and infection. …